Thursday, September 24, 2009
Monday, September 21, 2009
No news is good news, I suppose. Her MELD last week was 16 but that won't move her down on the list. She is always tired but who wouldn't be with all she does all day? She finally quit her job at the gym, I am glad even though she wasn't doing anything strenuous there. She has enough to do at home. I still haven't gotten her to sit down with me and try to pull up these great pics....thanks Summer for all your good wishes. Next Hopkins appointment is November.
Robbi's Mom
Robbi's Mom
Sunday, September 6, 2009
September Already
I apologize for being so slow in updates, but no news is good news! Robbi and her family (hubby & kids) had a great summer, went on 2 vacations, one to beach plus a couple of weekend camping trips. Robbi looks great, sometimes her ankles get a little swollen and she has had ascites off and on, they gave her Lasix for that. Itching is not so bad, she may be yellow but who can tell, she has the most awesome tan. Haha. Her doc says she has about 8 months left before her transplant is 'emergent', but you never know what complication is going to crop up to move you up the list. She's still a 17.
Let me see if I can add some pics, have been having trouble with that.
Robbi's Mom
ok, can't get the pics I want to here, need to get Robbi to help me....they're really good ones, too.
Let me see if I can add some pics, have been having trouble with that.
Robbi's Mom
ok, can't get the pics I want to here, need to get Robbi to help me....they're really good ones, too.
Tuesday, July 14, 2009
July 4th, 2009
The two little girls are Robbis, and the little boy is my oldest daughters youngest son.Thats my hubbys belly in the background. Haha.
Sunday, June 21, 2009
June 21, 2009
So many people have asked me how come I haven't put anything on the blog for so long, I decided I better just write a quick note.
Robbi is feeling good. Her next appointment at Hopkins is July 8. She said she still has the persistent itching, and slow clotting when she bleeds, but her swelling problems have gone away for now. We will know more about where she's "at" after her July 8 Dr. visit.
Thank You for your concern, interest, love and prayers for Robbi.
Robbi's Mom
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