Friday 1-22- 2010 Update

I thought Robbi always COULD put posts on here, oops, my bad, Robbi Now you can post away, Berta.

Last night Robbi was having extreme pain, so bad it was causing her to throw up, so off to the local ER she went w/ her husband. They were there most of the night of course and they did CAT scan and ultrasounds and labs. They said she has a lot of fluid (ascites) around her gall blader, spleen and liver. They put her on Dialudid for pain and told her to stay on it until she sees her transplant doctor. So I updated her co-ordinator this morning and she has an appointment for this coming Wednesday.
As soon as the sleet stops here I am going to go spend the weekend at Robbis.

Robbis Mom

robbi posting about robbi

finally my mom made it possible for me to post on here!!! Just wanted to start by saying thank you for all your kind thoughts and prayers and advice!!!

STILL Waiting

Well, here we are still. Helps to remember this is not a fast process when its going along like it's supposed to. Better to be waiting for the phone to ring than to be getting an emergency transplant. Lots of prayers would really be cool. Robbi is tired and her big sister has stepped up babysitting for her during the day while Madi is in school, so she can nap all day. Liver disease really saps the energy out of you like you wouldn't believe. Plus Robbi isn't used to just sitting/laying/sleeping all day. Thank you to everyone for your prayers and support.
Robbi's Mom

Jan 8 (?) Friday

Had a very encouraging conversation w/ Robbis transplant coordinator today, who I mainly called for her to reassure me that she knew how badly Robbi was feeling at home. Which she is on top of. She indicated it won't be long Robbi is right there at the top of the list, still waiting for right liver right bloodtype and the phone to ring. Robbi is so weak and tired now that she has been sitting on the sofa all day, everyday, trying to run the house & kids from there. So I got off the phone and re-packed my suitcase, which has been sitting by the door packed and ready to go for so long that I found a pair of sneakers inside that I had been looking for since before Christmas. haha.
Please continue your prayers for Robbi, which I know will be answered soon.
Love
Robbis Mom

Still Waiting

Well 2009 is almost over and Robbi is still anxiously awaiting her call from Hopkins.
Shes very very tired all the time and is sneaking naps in whenever possible. I remember sleeping all day and all night when I was towards the end. I don't know how Robbi does it with 2 kids underfoot but she does. I now Mike and my brother help her out too.
We wish nobody ill will but if anybody is drinking and driving in Region 2 this New Years Eve, I hope they are organ donors and are blood type A+. Its a sad fact of life that drinking holidays produce organ donors....
Peace and Good Health to all our friends and family in 2010. 2009 was sure a sucky year for our family.

Robbi's Holiday party given by Hopkins was nice. I think I heard there were several hundred people there. I forgot my camera as usual. Robbi looked great. Her team said she is going to do great because she is in such good physical condition. We got to see the Hopkins Transplant Quilt which is always a work in progress. Robbi still feels ok, very tired all the time though.

Still waiting.....

Still waiting, Robbis feeling kind of middle-of-the-road. We are going to go to her donor family/ recipient/ waiting list holiday party at Hopkins. That should be fun.
Everyone is packed and ready to go, just waiting for a liver to come.....