Update August 6, 2010

Robbi's back in the hospital again. Mike called me a few minutes ago and said she went to the ER about midnight with that dammed gall bladder pain again, she is still there waiting for a bed and transportation to Hopkins to be admitted again. She was only out 3 days this time. I will update later tonight when I know more.
Please keep Robbi in your prayers.

Robbi's Mom

Update August 5, 2010

Spent the morning at Robbi's today, along with her sister. She was very alert and NOT confused, seems the 2 full days and nights of sleep following her coming home from the hospital were just her sleeping off the drugs they had given her in the hospital. She still has low energy level but that's to be expected. She seemed more like herself today than she has in over a week. Shes not in any pain, and seemed very happy to be home.
Please don't stop praying for Robbi.

Robbi's Mom

Couple More Things

Robbi's MELD is now 21. Her MELD went up due to her bilirubin level going up (her amount of jaundice/ yellow color) She has jumped over 2 people on the waiting list as of last week/ this week. She is still very sleepy and is sleeping all day and all night. We are not sure if its due to the pain medicine she had in hospital and has at home now, or if she is starting with encephalopathy. She does have confusion but is so sleepy when I talk to her. I am going up tomorrow to check her out and help out with whatever I am needed for while I am there. Unfortunately you don't get any MELD points if you have high ammonia levels which causes the encephalopathy. (Which I don't think is fair because rising ammonia level is a significant event in worsening end stage liver disease and I think it should be counted for something...) Please remember Robbi in your prayers.

Robbi's Mom

Tuesday August 3, 2010 Update

Robbi came home from the hospital last night and is now at home resting. I talked to Mike and he said they put her on a bunch of new meds, one of which helps prevent the gall bladder and spleen flare-ups, another one for encephalopathy, and an antibiotic that she has to stay on daily until she is transplanted. He said she is very tired.
I will update again after I talk to her. Hopefully she will be getting her new liver soon! NEVER GIVE UP!

Robbis Mom

Sunday 8-1-2010

Robbi's still at Hopkins. They have done MRI, are planning to or have already done another paracentesis (tap), plan to do an ECG on her, and are working on keeping her pain under control. Mike is still with her and her sister has heroicly been watching the girls (that's 4 kids age 10, 8, 3 and 2...) I am keeping in contact with her over the phone. She sounds very sad and medicated.
Please keep Robbi in your prayers...

Robbis Mom

Friday June 30, 2010 Update

Robbi's back at Hopkins again after a night at the local hospital ER due to pain (apparently another gall bladder attack) She and Mike were in the ER all night Wednesday waiting for ambulance transport to Hopkins to be admitted. Finally yesterday evening Mike said they were there and got her in a room. I talked to her but she was very drugged and sounded tired. Poor Robbi. Shes been through way too much. I'm not sure if she will be happier to get a new liver or to get rid of that hideous gall bladder.
Please continue to pray for Robbi, and her family. Her girls miss her when shes gone, and Molly doesn't understand. One day a few wees ago, Madi talked to my mom on the phone and said "My mommy has a drs appointment Wednesday, and she will be picking up her new body part!." :)

Robbis Mom

Saturday 7-10-2010

Robbi was discharged today. No transplant, obviously. They don't know why she is having liver pain. They gave her pain meds and she is using a warm water bottle for the pain also. She is also on an antibiotic until she gets a transplant. We learned she has a spot on her lung, another thing they have known about, but neglected to tell Robbi. It was a very bad hospital trip this time and Robbi is depressed and feeling down. I know they will be calling her soon but the wait for Robbi is unbearable when coupled with pain and the knowledge that she has liver cancer, some lung spot now we don't know what it is, and the knowledge that the gall bladder could act up any time and put her back in the ER. Please pray for her. She really doesn't deserve all the crap coming her way these days.

Robbis Mom