August 16, 2010

Robbi attended our annual family cookout and looked wonderful. She even made me a birthday cake! Her eyes are very yellow but her skin looks normal. She was very alert but said both of her arms are still sore from all the IV's she has had lately.
:( Hope that gets better soon, as you have IV's coming from places you never knew they could PUT an IV when you are transplanted. We really feel its going to happen soon, hope we are all right. Please keep praying for Robbi!

Robbi's Mom

August 11, 2010 Update

Robbi came home Monday, she slept some at first and her sister and I kept the kids even after Robbi got home cos we wanted her to have a little bit of quiet before sending the kids back...she is now perky from what her sister and husband tell me.
She is not pain-free, she still has pain but is managing to "deal with it" as long as it doesn't spiral out of control as it sometimes does, which is what lands her in the hospital again. Thats about all the news I have I really have a feeling we will be hearing they have a liver for her sooner rather than later, it feels so close....
please keep Robbi in your thoughts and prayers. She is being so brave and its hard to watch her get sicker and being in pain. I am still ready but moved my suitcase to the car instead of keeping it by the door, now if I want some articles of clothing I have to go out to my car for it. LOL.

Robbi's Mom

Madison

Poor Madison, who has gotten lost in the blog pictures and has barely been shown, she is a beautiful little girl and very smart. She knows her mommy needs "a new part" but that is all she knows, any more info would freak her out. She knows Mommy will have a scar on her belly like Gramma does. Madi is such a sweet little spirit, just like her Mom, she asked her Dad if she could get her long hair cut off short and donate her hair to Locks of Love "so a kid can have hair that has cancer." (And she did, this picture was taken before she got her haircut.) I think thats pretty cool coming from a 7 year old child! She also takes karate, and has gone all the way to green belt and loves to spar, and she's been in it not quite a year!

I talked to Robbi on the phone about 11:30 this morning, she was very sleepy sounding and said nobody has said anything to her today about discharge but they also haven't said she isn't being discharged, she said some of the pain has returned in gall bladder area....so we will see what happens but I have a funny feeling she might NOT get discharged. On the other hand, she has been discharged "in pain" just a few weeks ago with an Rx for pain meds, so maybe that's what they will do...

Robbi's Mom

Want Some Great News???

Robbi probably had a gall stone stuck in her bile duct,which caused the massive pain that took her to the ER the other night, and they said they think she has passed it which is why her pain is not bad now. They are feeding her regular food and are saying she will probably be discharged tomorrow. But, the GOOD NEWS is.....she is now a MELD of 23!! This shoots her right up to the top of the list and she was already close to the top anyway. This could be the beginning of a countdown to her transplant very very soon!!! Pray she gets a liver as soon as possible, hopefully in the next week or two!!!!
Robbi's Mom

Paint Your Toe with an "R" for Robbi.....

One of my online friends Sandra painted her toe with an "R" in honor of Robbi. She sent a pic, I think its adorable....

Robbis Mom

August 7, 2010 update

Robbi finally got to a bed at Hopkins last night around 9pm, she started out Thursday night around midnight at her local ER and it took till 9pm the next day to get her in a room at Hopkins. Mike said they took her to ultrasound right away, and later will do a CT scan or MRI. I talked to her about 10pm and she sounded good, her pain was under control but she hasn't eaten since Thursday and was starving, is NPO as usual.
Dunno how long she will be in. Wish a liver would come in while shes there.....
Mike is staying in the hospital with her, Raven has Madi and I will have Molly starting later today. Please don't stop praying for Robbi.

Robbis Mom