Waiting on the Mail Bunny, Not EasterBunny

Hope you all had a nice Easter. The whole family ate Easter dinner at Robbi's, with the kids and grandkids, and Mom & Rich. My girls are very good cooks!
This week is the one we are expecting the letter from Hopkins regarding the waiting list. Pins and needles, man!
Robbi got a letter last Friday from Hopkins, on the 29th this month they are having an all day seminar for pre and post transplant patients, her surgeon is going to give a talk about how the surgery goes, and a few other speakers, then lunch, then a tour of their transplant unit.
That should be interesting.

UNOS: What it is and How it Works

http://unos.org/

Here is a wonderful website for UNOS explaining organ allocation and how their organization operates.

How they calculate the MELD scores

The MELD score is what determines who gets the next organ. Its an allocation system I am just learning too, as the year of my transplant was the last year before they initiated the MELD system. Anyway, heres a link to how they do it and why:
http://www.janis7hepc.com/transplants5.htm#How%20to%20Calculate%20MELD%20score

THURSDAY April 9 2009

Today is the day the Medical Committee meets to discuss Robbis case and decide if shes a candidate for the transplant list. Please keep her in your thoughts today. We will get a letter next week to let us know what their decision is. Nail-biting and pencil-chewing time.

Robbis Mom

Mike, Madison, Robbi and Molly

Madisons Ballet Recital last year in May

Robbis second day of testing at Hopkins is finally over. She met with psychiatrist, financial counselor, and had a Ct scan, and sono, and did her pulmonary tests. No icky needle, either!!!
Thank God. Ask anybody who has ever had Arterial Blood Gasses drawn. But they didn't need to do them, so at the end of the day they said the medical committee meets this Thursday and they make the decisions who goes on the list or not and she will most probably be listed, and her wait will be anywhere they estimate from a couple months to a year. She said one person got their transplant six days after they got put on the list.
It was all good news to hear and she is young and healthy so they said she will do fine. We left there feeling really good about this.
Now we wait for the letter! :)

Robbi's Mom

And I forgot to say her MELD score was 17 today.