Wednesday May 6, 2009
Robbi is about the same. Her next regular appointment is in JUNE so that's encouraging. You know when you are 9 mos pregnant and all you want is to HAVE THAT BABY ALREADY! and have it be over, so you can start your life with your new baby- well, its kind of like that when you are waiting for a transplant. "Please let it happen as soon as possible, and lets get it over with, so I can get on the other side of this with my new liver, and get my life back".
So its just a day at a time for her
.Thank you all for keeping her in your thoughts and prayers.


Robbis Mom

Robbi in front of one of the many entrances of Hopkins

Sunday May 3, 2009

Last week on Wednesday was the Orientation and Tuor for the people who are newly listed for liver transplants at Hopkins.

We both learned a lot and they fed us a nice healthy lunch. They gave us lots of new reading material, and then we toured Nelson 7, which is the floor the liver transplants go to

after they get out of SICU. We met lots of really nice poeople who are sick and waiting, and sick of waiting, just like Robbi.

This picture was taken at a statue of Christ they have in the original part of Hopkins, I had to sit on the floor to take it, its absolutely huge.

Monday April 27 2009

Not much going on past few days with Robbi, except her ascites fluid build up in abdomen which will cause the body to resemble pregnancy- ( not octo-mom big!!!!) But bigger than Robbi wants to be, since she has been working hard since Molly was born to get back in shape, and was looking very *buff* before she started to get sick weeks ago. :(. Her transplant surgeon told her she must quit working immediately , last week. Another :(. As of today, she is enjoying the warmer weather, trying to "keep cooled off" (it went from chilly to sweltering here in 1-2 days!!) and doing what she does everyday- carpooling 5-6 kids to and from school every day, and keeping up with Molly all day.
Thank you to friends, family & followers of Robbis blog for the well-wishes. Your comments make Robbi :)smile.
(MELD score remains unchanged)
Robbis Mom

Tuesday April 21, 2009

Friday Robbi was feeling bad so she called her transplant doc @ Hopkins and he said he wanted to see her Monday morning. So we made the trip to Baltimore in the pouring rain yesterday.
He said her liver is "going downhill fast" and give or take she has 6 mos to 1 year before she will need to be transplanted. They did bloodwork and we started on the trip back home. Before we got anywhere near home, Robbi was nauseated and looked terrible. When we got back, she had to lay down, had chills and couldn't get warm, and had a fever.
Mike ended up having to take her to her local hosp emergency room. They scanned her, did labs, etc and gave her some morphine and something to bring her fever down, and some antibiotics for urinary tract infection, and contacted JHH who said she did not need to be transported down there.
So today her hubby is staying home from work to take care of her, and she still feels pretty bad. Hopefully its just a bug she picked up and she will be feeling better soon.
Her next regular scheduled appointment is June. We won't know her updated MELD score till later today, from when they drew the labs yesterday at Hopkins. Her last one was 17.
Thanks for all your well wishes for Robbi.

Robbi's Mom

Saturday April 17 2009

Robbi was having a few symptomatic things going on yesterday, spontaneous nosebleed she couldn't get under control, a couple other things I don't think she would appreciate me putting on the blog, so she called her hepatologist @ Hopkins and he wants to see her Monday morning at 10:30am. He said he will get blood work done then too. Maybe we will get a new MELD score. Please keep her in your thoughts this weekend.

Robbi's Mom

A really quick note to let you know Robbi is doing ok. Shes still a yellow-ish color, something I didn't really realize till lately because its been coming on so slowly. Whites of her eyes are still white, though. Shes starting to have problems with ascites. And the itching has gotten a little bit better but not much. Her spirits continue to be good (as it relates to this issue) but still NO LETTER YET! Its Friday!!!!

Robbi's Mom