9-8-2010

I haven't spoken to Robbi in a week (!!!) because she has been spending her days (and nights) sleeping while her in-laws are here. Mike said she has been able to keep her pain level down and is eating little bits of food here and there. She is still throwing up occasionally. That's all I know to update with until I speak to Robbi. Please keep praying for her.

Robbi's Mom

9-3-2010

Robbi had to go to the emergency room again last night due to the pain (gall bladder?). She spent most of the night at the ER, they gave her meds to relieve her pain, and she was discharged at 4am.
Shes home now resting and says the pain is manageable right now. Can you imagine walking around for a year with a bad gall bladder? Anyone who has ever had a gall bladder problem and ends up getting it removed knows what I mean. That gall bladder might turn out looking worse than her poor liver once they get her to the OR. When I had my gall bladder out, the dr. ended up taking pictures of my liver while they had me opened, because he couldn't believe I was still alive with that liver. It was pale and looked like a cobblestone road, nothing like a liver is supposed to look like. I ended up living about another year with that poor liver. I am sure Robbi's is very similar.
The wait will be over soon, it could be any day, we know that for sure, and that sure is a good feeling!

Robbi's Mom

9-1-2010 WOOOOOO HOOOOOOOO

Robbi had her doctors appointment today and she is now officially #1 on the list for the next A+ liver that is available, she's NEXT!!!! 18 months on the list, finally at last!!!!

Now we can hold our breath waiting for that liver to come in.
Thank You for praying for Robbi,and please pray for the family of whoever her donor turns out to be, for having to make such a hard decision and for giving the most precious gift of all, LIFE.

Robbi's Very Happy Mom (can I breathe yet?)

wednesday, September 1 2010

This is Robbis oldest sister Raven, who helps her out so much. THANK YOU Raven for everything you do for Robbi.
Robbi has a regular doctors appt today with her Hopkins doctor. Hopefully her MELD will go up.
She feels so bad, he might even admit her. COME ON LIVER!!!
Thank You to everyone who follows Robbi's on her journey and prays for her. She is a brave strong girl. Hopefully her journey is ready to move into a transplant!

Robbi's Mom

Tuesday, August 31, 2010

Robbi is hanging in there, she has had some gall bladder pain and almost went to the hospital Monday night= was planning on it Sunday- but felt a little better. Her in laws are here from Missouri for 2 weeks, then they are going home 1 week, then they are coming back to stay indefinately. Such a relief to have them there, 2 more pairs of eyes on Robbi and they can let her sleep all day if she needs to, they know they girls schedules, etc. What a Godsend they are.
Mike told me her eyes are very very yellow. Shes sleeping day and night just about.
I know we have got to get that call soon. We are all on red alert.....suitcases ready, etc.
Robbi says she still feels those bands and in her throat, and they still feel like a tortilla chip stuck in her throat. Ugh, no wonder she eats very little. What she does eat shes really not able to keep down anymore, she just prays her pills stay down. Shes doing the best she can to keep food in her but its hard for her. Like I said, shes a thrower-upper for sure! We had "Girls Night" Friday night here and she barely made it to 8:00pm, she got on the couch with her barf bag and blanket and was asleep all night.
Thank You for your continued prayers for Robbi. It means so much to her that so many people care besides just the people she knows. Shes in awe so many people are praying for her. The picture I attached is not a real recent one but its a familiar sight- Robbi on the sofa with one of the girls- usually Molly- curled up with her.

Robbi's Mom

Friday August 20, 2010 Update

Robbi's Home!!!!!!

Friday, August 20, 2010 Update

OK so they took Robbi down yesterday to a procedure room and knocked her out with the propofol and looked at her esophagus, they tied off 2 or 3 (can't remember-sorry) varices that had been bleeding and the rest they said looked ok.
When Robbi woke up her throat hurt, she said today that it feels like a tortilla chip is stuck halfway down her throat. Her voice is very scratchy and I felt a little bit guilty calling her and making her talk. They said once she can eat and go poo and pee they will send her home! So, maybe today. The also did a chest xray, since she complained so much about her throat hurting,they wanted to make sure everything looked normal in there, which I guess it did because they didn't do anything different.
So shes working very hard to eat what she can, said this morning she managed to get scrambled eggs down. Please continue to pray for Robbi!

Robbi's Mom