Thursday, October 13, 2011

October 12, 2011

Robbi has been in Hopkins again, after just getting out in September, this time for left sided kidney pain. While she is in there they have continued to wean her off the Prograf and started her on the Cellcept. The Teleprivir cannot be given w/ any immunosuppressant other than Cellcept, which is the reason for the change. Generally they do not like to change your immunosuppressant if all is going well with it.
Teleprivir is a new drug just approved by the FDA in March of this year. Its a "booster" drug to be given the first 12 days of Interferon/combo therapy. Robbi is being given it towards the end of her therapy- they said after she has received it for a few days her viral load will be -0-. Hooray!
They are transplanting her again by the end of the year. She is starting her tests to be re-listed next week when she gets out of the hospital. I am sure I listed all those tests somewhere a long ways back when she was just being listed the first time. So much has happened since then! I
so hope she can get a new liver with a -0- viral load, and live a long and happy life. She sure deserves a break after all she has been through. Shes been so brave and strong throughout it all.
Just like my Robbi always is.
Dunno how ready the girls are for this rollercoaster again, I don't even think Mike & Robbi have told them yet. Maybe its best they don't know till it's imminent.
Thank you all for your prayers and good thoughts you send to Robbi and her family.

Robbi's Mom

September 2011

Robbi's first anniversary of her liver transplant came and went (September 16) with her in the hospital. I made fancy cupcakes for her and her nurses. Mike delivered them. Her back has several compression fractures and that's what has been causing her pain this time. She should be back home in a few days.