Robbi met with the transplant team regarding her re-listing this week. They are moving forward with the listing process and not making her wait until she has been at zero viral load for 8 weeks as originally planned. She is very motivated and anxious to get all the tests completed as fast as possible. Transplant Team also said she will most likely be transplanted Jan-Feb 2012 rather than before Christmas. They want to get her inpatient and bulk her up as much as possible before transplant. Get some weight back on her.
Robbi's appetite is very good in the evenings but during the day she is very nauseated and does throw up all day long. She is about 115 lbs and is very, very thin. If not for the vomiting she would probably be a healthy weight. She does sleep much of the day away, but she likes to be awake and interactive when the girls get home from school, and she cooks dinner for the family and does as much as she can in the evenings with them. Mike is a great help to her, and allows her to sleep as much as she needs to during the day. They still do family activities and errands together most of the time.
Robbi is extremely excited to start making scrapbook pages for her new album, which she won as a door prize a few weekends ago when her Grandmother, her sister and I attended a Women's Conference. She has been wanting to get started in scrapbooking, a hobby she can do while resting, and while in the hospital, she hopes. She is still collecting supplies and stuff here and there before she starts. She plans to go to a free scrapbooking group 2 x a month at the girl's school.:)
She hasn't lost her sense of humor or her caring and compassionate nature for others as she goes through all of this nightmarish re-transplant process.
Thank You for continuing your prayers for Robbi.
Robbi's Mom
