Saturday, May 23, 2009

Saturday, May 23, 2009

Robbi's MELD is still at 17, she has new orders from her Hopkins doc to get an MRI w/ IV Contrast of her abdomen/liver the first part of July. She will have labs again in about 2 weeks. She is having success with the meds to help her get rid of the extra fluids, so she is glad to see her weight in general go down. I think she looks too skinny, but that's just a mamma talkin'. She has a busy Memorial Day weekend planned, Mikes Birthday is Sunday, and Molly's 2nd Birthday is Tuesday so the Memorial Day cook-out is going to be at Robbi and Mikes, with all of us bringing something. This pic is from our last Friday Girls Night, Robbi Raven and I had chineese food then dipped strawberries, apples, and stuff into melted chocolate. Ummm.
Robbi's Mom

Saturday, May 16, 2009

Friday, May 15, 2009

Friday, May 15, 2009

Hello friends, family, and followers. Not too much is changed with Robbi, she continues to have her regular days at home with the kids, getting her labs done. Her last MELD was 17, last week. We are still waiting to see what this weeks labs are. Since last week she has been started on Lasix and Spironolactone, due to edema (fluid) in her ankles and I think it helps a little w/ the ascites initially, too. Shes taking it a day at a time, she's a strong girl. She stays in close communication with her Transplant Co-Ordinator, who really does become the most important person to you when you are listed for transplant. It's very comforting knowing there are great doctors, nurses, surgeons, and all the others that work as a team for their patients.

Robbi's Mom
MELD- 17, still, as far as we know.....

Wednesday, May 6, 2009

Wednesday May 6, 2009
Robbi is about the same. Her next regular appointment is in JUNE so that's encouraging. You know when you are 9 mos pregnant and all you want is to HAVE THAT BABY ALREADY! and have it be over, so you can start your life with your new baby- well, its kind of like that when you are waiting for a transplant. "Please let it happen as soon as possible, and lets get it over with, so I can get on the other side of this with my new liver, and get my life back".
So its just a day at a time for her
.Thank you all for keeping her in your thoughts and prayers.

Robbis Mom

Sunday, May 3, 2009

Robbi in front of one of the many entrances of Hopkins

Sunday May 3, 2009

Last week on Wednesday was the Orientation and Tuor for the people who are newly listed for liver transplants at Hopkins.
We both learned a lot and they fed us a nice healthy lunch. They gave us lots of new reading material, and then we toured Nelson 7, which is the floor the liver transplants go to
after they get out of SICU. We met lots of really nice poeople who are sick and waiting, and sick of waiting, just like Robbi.
This picture was taken at a statue of Christ they have in the original part of Hopkins, I had to sit on the floor to take it, its absolutely huge.