Robbi's MELD is now 21. Her MELD went up due to her bilirubin level going up (her amount of jaundice/ yellow color) She has jumped over 2 people on the waiting list as of last week/ this week. She is still very sleepy and is sleeping all day and all night. We are not sure if its due to the pain medicine she had in hospital and has at home now, or if she is starting with encephalopathy. She does have confusion but is so sleepy when I talk to her. I am going up tomorrow to check her out and help out with whatever I am needed for while I am there. Unfortunately you don't get any MELD points if you have high ammonia levels which causes the encephalopathy. (Which I don't think is fair because rising ammonia level is a significant event in worsening end stage liver disease and I think it should be counted for something...) Please remember Robbi in your prayers.
Robbi's Mom
Wednesday, August 4, 2010
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