The MELD score is what determines who gets the next organ. Its an allocation system I am just learning too, as the year of my transplant was the last year before they initiated the MELD system. Anyway, heres a link to how they do it and why:
http://www.janis7hepc.com/transplants5.htm#How%20to%20Calculate%20MELD%20score
Thursday, April 9, 2009
THURSDAY April 9 2009
Today is the day the Medical Committee meets to discuss Robbis case and decide if shes a candidate for the transplant list. Please keep her in your thoughts today. We will get a letter next week to let us know what their decision is. Nail-biting and pencil-chewing time.
Robbis Mom
Robbis Mom
Wednesday, April 8, 2009
Tuesday, April 7, 2009
Robbis second day of testing at Hopkins is finally over. She met with psychiatrist, financial counselor, and had a Ct scan, and sono, and did her pulmonary tests. No icky needle, either!!!
Thank God. Ask anybody who has ever had Arterial Blood Gasses drawn. But they didn't need to do them, so at the end of the day they said the medical committee meets this Thursday and they make the decisions who goes on the list or not and she will most probably be listed, and her wait will be anywhere they estimate from a couple months to a year. She said one person got their transplant six days after they got put on the list.
It was all good news to hear and she is young and healthy so they said she will do fine. We left there feeling really good about this.
Now we wait for the letter! :)
Robbi's Mom
Thank God. Ask anybody who has ever had Arterial Blood Gasses drawn. But they didn't need to do them, so at the end of the day they said the medical committee meets this Thursday and they make the decisions who goes on the list or not and she will most probably be listed, and her wait will be anywhere they estimate from a couple months to a year. She said one person got their transplant six days after they got put on the list.
It was all good news to hear and she is young and healthy so they said she will do fine. We left there feeling really good about this.
Now we wait for the letter! :)
Robbi's Mom
Monday, April 6, 2009
4-6-09
Today was a very uplifting day, if you can call it that. Robbi, Mike and I arrived at Johns Hopkins and she immediately had her 3D cat scan of her liver, labs (18 tubes!), Surgical consult- met her surgeon and he is wonderful, and we all feet much more comfortable once we met him. She also met her Social worker and her Transplant CoOrdinator, and had a chest xray. The surgeon said he estimates- his best guess because we kind of forced him to tell us- that Robbi has a few months to a year before she will need to be transplanted. She will have a few episodes where she gets worse, and hopefully they are few, and hopefully all the planets will align and she will get her new liver.
Tomorrow she starts off her day at Hopkins with Pulmonary Function Test, a 2d echo, bone denisty scan, Psych consultation and Financial Consultation.
They are very organized at Hopkins and as big and diverse as the hospital is, you don't feel like "you are a number". All of the people who work there are so nice- even to each other!! (Our last experience in another hospital was quite the opposite.) The 2 hour drive down is a drag but hey, could be worse. We wre going to check out taking the metro from Shady Grove or something and see how that goes.
Thank you for taking the time to read about Robbi and offer her encouragement. She is fortunate to have sych wonderful friends and family.
Robbis Mom
Today was a very uplifting day, if you can call it that. Robbi, Mike and I arrived at Johns Hopkins and she immediately had her 3D cat scan of her liver, labs (18 tubes!), Surgical consult- met her surgeon and he is wonderful, and we all feet much more comfortable once we met him. She also met her Social worker and her Transplant CoOrdinator, and had a chest xray. The surgeon said he estimates- his best guess because we kind of forced him to tell us- that Robbi has a few months to a year before she will need to be transplanted. She will have a few episodes where she gets worse, and hopefully they are few, and hopefully all the planets will align and she will get her new liver.
Tomorrow she starts off her day at Hopkins with Pulmonary Function Test, a 2d echo, bone denisty scan, Psych consultation and Financial Consultation.
They are very organized at Hopkins and as big and diverse as the hospital is, you don't feel like "you are a number". All of the people who work there are so nice- even to each other!! (Our last experience in another hospital was quite the opposite.) The 2 hour drive down is a drag but hey, could be worse. We wre going to check out taking the metro from Shady Grove or something and see how that goes.
Thank you for taking the time to read about Robbi and offer her encouragement. She is fortunate to have sych wonderful friends and family.
Robbis Mom
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