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So many people have asked me how come I haven't put anything on the blog for so long, I decided I better just write a quick note.
Robbi is feeling good. Her next appointment at Hopkins is July 8. She said she still has the persistent itching, and slow clotting when she bleeds, but her swelling problems have gone away for now. We will know more about where she's "at" after her July 8 Dr. visit.
Thank You for your concern, interest, love and prayers for Robbi.
Robbi's Mom
So. I think Robbi is really getting into the blog, she even checked out our Doomsday forum but is too shy to post, I told her don't be skeered, these are all good friends. But I got her reading a TC forum, so I may convert her, yet! Just as a hobby. Like the mother of a second grader, a 1 year old, a relative that lives in her basement, plus one of those husbands, needs a hobby. Oh, and she works. Oh, and she goes to the gym.
I spent the night at her house last night and she looks really good, eyes no yellow at all, she is tan but no jaundice. And I am sure that she would want it to be known that her BELLY IS FLAT.
Robbis Mom
Robbis MEL
D is still 17 right now, but she is starting to have the problems with itching. She has gone through this once before when she was 16 weeks pregnant with Molly and had liver failure. She was scratching so much she was bloody. I know it might be hard to understand, but Heppers get this itch eventually, and it drives you crazy. First, its here there and everywhere. It seems to be worse at night, and I remember taking a hairbrush to bed with me to scratch scratch scratch.
And the weird thing is, no matter how you scratch, it still itches, which is why people scratch like crazy...I recently heard someone suggest you scratch ANY itch (not just the Hep itch) with an ice cube, the cold numbs it and you aren't tearing yourself up. Now they tell us!!!!! They do have some medications specifically for this hep itch, but trust me, it doesn't work very well, doesn't work everytime, and it must be drank after mixing it with water or juice and its sooooooo nasty. Like drinking orange tang-flavored cement.
The itching is just another step towards transplant, the liver breaks down like an old Ford truck, slowly, sometimes fixable, tricky, etc. It puts Robbi one symptom ahead towards transplant. She really has my sympathy with the itching, its like your elbow and your other knee itch all of a sudden, then it's a spot on your neck, then it's your calf, then it's the bottom of your right foot while you are wearing sneekers and socks and driving a car. Thanks for the support of all our friends, and family.
Robbi's Mom
PS The beautiful clematis...I had to share this picture because nobody got to see it in its short 48 hours under my care in the yard. I don't know why. I planted it (from Home Depot) and 2 days later, dead. Might try another one.
Nothing is really "new" with Robbi. She continues to look so much better, no jaundice, no ascites, no edema. We know this is a smalll repreive and her liver will eventually start causing avoc on her health and not relent until its out and she has a new one. Robbi is enjoying her summer with the girls (her daughters) for now.
Thanks for everyone's prayers and well-wishes.
