Thursday, June 11, 2009

Thursday June 11 2009 Update

Robbis MELD is still 17 right now, but she is starting to have the problems with itching. She has gone through this once before when she was 16 weeks pregnant with Molly and had liver failure. She was scratching so much she was bloody. I know it might be hard to understand, but Heppers get this itch eventually, and it drives you crazy. First, its here there and everywhere. It seems to be worse at night, and I remember taking a hairbrush to bed with me to scratch scratch scratch.
And the weird thing is, no matter how you scratch, it still itches, which is why people scratch like crazy...I recently heard someone suggest you scratch ANY itch (not just the Hep itch) with an ice cube, the cold numbs it and you aren't tearing yourself up. Now they tell us!!!!! They do have some medications specifically for this hep itch, but trust me, it doesn't work very well, doesn't work everytime, and it must be drank after mixing it with water or juice and its sooooooo nasty. Like drinking orange tang-flavored cement.
The itching is just another step towards transplant, the liver breaks down like an old Ford truck, slowly, sometimes fixable, tricky, etc. It puts Robbi one symptom ahead towards transplant. She really has my sympathy with the itching, its like your elbow and your other knee itch all of a sudden, then it's a spot on your neck, then it's your calf, then it's the bottom of your right foot while you are wearing sneekers and socks and driving a car. Thanks for the support of all our friends, and family.

Robbi's Mom
PS The beautiful clematis...I had to share this picture because nobody got to see it in its short 48 hours under my care in the yard. I don't know why. I planted it (from Home Depot) and 2 days later, dead. Might try another one.


Suzy said...

I was clicking on your link to find you and reply to your comment about the ringing phone and now I find Robbi needs a liver. I will do a shout out for her on Monday on my blog. It might help someone else going thru this.

As to the phone, there is NO doubt in my mind someone from the other side was calling you, maybe just to hear your voice or let you know they were around you. The phone currency is 99% (even in dreams) someone calling from the other side, especially if the phone is unplugged and in a closet.

Did someone close to you die around that time or during that year?

Robbi, you're in my prayers. Love to you and your mom.

abbie said...

Suy I dunno if anyone died around that time but I know we almost died when that phone rang. I mean... it was still in the box!!!!!! How spooky is THAT?
Thanks for your well wishes for Robbi.

Jenn @ Juggling Life said...

Suzy sent me here (I always do what Suzy says) and I had to first find out what MELD score meant. It is like being thrust into an alternate universe.

I hope your daughter is able to get a transplant. I remember my mother's bout with Hepatitis B when I was a child and how exhausted and sick she was.

I will think good thoughts for your family.

Vodka Mom said...

came over from Suzy- and am PRAYING my ass off right now for you and your family.

for real.

dizzblnd said...

Suzy sent me here. You all are in my prayers. The second plant won't die. You got the hang of it know.

dizzblnd said...

do you have a paypal donation account set up? I would love to help. It wouldn't be very much at all, but it could lead to so much more. Bloggies are wonderful people

Lynn said...

Suzy sent me over!
I am going to check on you every day now. You are in my thoughts. I am sending good vibes your way.
Prayers, if you will.

MereCat said...

Suzy sent me. Stopping by to send love and prayers to you and your family. I'm just so sorry you are dealing with this.

abbie said...

No, we don't have a pay pal account, all we ask for is prayers and good wishes. One thing everyone reading this can do is be sure your doc has your blood checked for Hep C (because you never typically lays dormant around 20 years before you get any symptoms....) and learn about Hep C, and even more interesting, learn about your liver and what an important organ it is and all the stuff it does, I am a nurse and even I was amazed to learn how much this organ does. Makes the heart and lungs look like slackers! LOL. And lastly, decide if you want to be an organ donor or not, fill out the organ donor card and make sure your family knows your wishes, and :) knowing that someday, you will save at least one life and potentially seven lives.
Peas n love
Have a good weekend
Robbies mom

dizzblnd said...

I am proud to say I AM an organ donor. I will continue to pray