December 25, 2010

Bruce and I visited Robbi today.. I am so glad my mom is there. I gave her a chest with 40 kinds of tea in it and she and Robbi have been happily drinking the tea and eating christmas cookies. Ravens sister brought her a beauitiful artificial Christmas tree which they decorated and put on the windowsill in front of Robbis window. She has the prettiest window at Hopkins right now. I took a pic of it but am having trouble downloading it just now. Its a drag to be in the hospital over Christmas but my mom has made it special for her. She misses the girls and Mike but they are all sick right now. Robbi is doing somewhat better, the pancreatitis is still present but not as bad as it was. She's waiting for her prograph level to go down then the docs think her urine will get the right color and she can began to shed that extra fluid shes got on her. We are all very optomistic now.
They won't screw anything up with my mom there shes a retired ICU nurse and asks pagefulls of questions. Hooray for Mom. She did the same for me.

Robbi's Mom

12-24-2010 Merry Christmas

Heres the situation where Robbi stands now:
She started with a bilirubin of 19 (very very high, she was glowing she was so yellow) And they did 3 liver biopsies and concluded that the hep C that had so aggessively invaded her, but had not harmed the liver. Her pancreatitis is resolved and she can now eat food. Her pneumonia is resolved. Her Prograf (her immunnosuppressant) was way to high so they are giving her nothing until it comes down to 19 then they will resume giving it to her. Dunno how it got so high.
Her kidneys are functioning crappy- thick brown urine, but the docs say when her prograf level gets to where it should be the urine problem should resolve. She fell one day going to the bathroom and smacked her forehead on the toilet, they rushed her to cat scan to be sure she had no internal brain bleeding. She is able to get up and take walks in the hallway, now, with my mom by her side.
My mom has been with her 4 days following my 3 days with her. Her sister is on the way as I write this to surprise her with a tree and some gifts. I will go down there the 27th and stay a few days. Three is about all my back can tolerate in the chair/bed they have there. Bruce and I are also going down tomorrow- Christmas Day. We won't be doing the big family Christmas dinner till Robbi comes home.
That's about all there is to update about her. They have done some pretty hideous things to her and she is so brave. I sit back in the corner and bawl cos its so awful to see them do those things to my baby.
I will update when something new happens. Right now shes steadily improving. Thank You Lord for that miracle.
Merry Christmas / Happy Holidays to everyone.

Robbi's Mom

12-17-2010

Please pray for Robbi that she makes it through this, its apparently very serious and they have only had 1 patient with this before. Not good. I am more worried about her now than I ever have been. I am going down Monday to spend a night or two with her. Remember her in your prayewrs. She a very sick girl, won't be home for Christmas they said.

Robbis Mom

December 17, 2010

Robbi is back in the hospital. Her bili is 19. Thats very very high. The drs say its the hep C attcking her new liver but don't know why she is having such a severe reaction. Shes going for ultrasound today. Monday or Tuesday they are doing a liver biopsy and if it shows signs of fibrosis in her liver they are going to go ahead and start her on Interferon. The need top get her INR down. Poor Robbi, she just want to be home for Christmas. We will bring Christmas to her in the hospital but she won't be able to see the kids. So sad. Please continue to pray for Robbi.

Robbis Mom