Hi. Heres an update on Robbi, hope I don't leave anything out:
Robbi has been doing very well with her Interferon and ribavirin therapy. Pills everyday plus injection once a week. Leaves her sick for about 2 days afterwards. But her viral load is going down and thats what we want. Treatment is working!
In June Robbi was in hosp for a week (Hopkins) due to her huge abdomen and pain. They started
talking about one thing then changed their minds and then discharged her, having done nothing. Oh well. She feels better now but has a huge abdomen and a really ugly hernia.
Also she had all her hair cut off cos it was falling out (from treatment)., but it looks GREAT short too.
So currently shes enjoying summer w/ her kids, and doing her treatment. She has lost so much weight she looks anorexic. Thanks everybody for keeping her in your thoughts and prayers.
Sept 16 is her 1 year mark. Pics to follow....
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ROBBI,28,HAS HEPATITIS C AND NEEDS A LIVER TRANSPLANT. THIS BLOG IS ABOUT HER JOURNEY FROM LIVER DISEASE, TO TRANSPLANT, AND BEYOND. Written by her Mom.
One Last Thing
Thank You to every single person who read Robbi's Blog, who left notes of encouragement either here on the blog, or in private messages on the boards, or in posts to Robbi and I on the boards, or in emails to Robbi and I.
Thank you for following her and her family on her almost 18 month long journey, which thankfully has had a happy ending.
We especially want to thank:
Our Lord and Saviour, Jesus Christ, without whom this transplant would not have been possible.
Dr. Gurakar- Gastroenterologist & Hepatologist
Nancy Carey-Beaver, RN Transplant Coordinator
Dr Cameron- Fabulous Liver Transplant Surgeon
All of the Johns Hopkins Liver Transplant Team working the OR :)
The Angels that we called Nurses in the SICU
All the staff of Nelson 7- Transplant Unit-you ALL rock!!
Robbi's wonderful husband Mike, who rolled with the punches, became a Mom and a Dad sometimes, was a rock for Robbi to lean on, made this journey beside her, and kept his sanity, somehow, through it all.
We Thank and Honor the Donor Family, for their most precious Gift of Life. May the Lord heal their hearts, as He is healing
Robbi's body.
Thank you for following her and her family on her almost 18 month long journey, which thankfully has had a happy ending.
We especially want to thank:
Our Lord and Saviour, Jesus Christ, without whom this transplant would not have been possible.
Dr. Gurakar- Gastroenterologist & Hepatologist
Nancy Carey-Beaver, RN Transplant Coordinator
Dr Cameron- Fabulous Liver Transplant Surgeon
All of the Johns Hopkins Liver Transplant Team working the OR :)
The Angels that we called Nurses in the SICU
All the staff of Nelson 7- Transplant Unit-you ALL rock!!
Robbi's wonderful husband Mike, who rolled with the punches, became a Mom and a Dad sometimes, was a rock for Robbi to lean on, made this journey beside her, and kept his sanity, somehow, through it all.
We Thank and Honor the Donor Family, for their most precious Gift of Life. May the Lord heal their hearts, as He is healing
Robbi's body.
Followers
3 comments:
So happy to finally hear something. I am sure you have been very busy. Hard to believe one year is right around the corner. Enjoy those daughters and prayers coming your way. Stay positive.
No update since July??
would love to hear how things are going. Would like to know our prayers are working.
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