Paint Your Toe with an "R" for Robbi.....

One of my online friends Sandra painted her toe with an "R" in honor of Robbi. She sent a pic, I think its adorable....

Robbis Mom

August 7, 2010 update

Robbi finally got to a bed at Hopkins last night around 9pm, she started out Thursday night around midnight at her local ER and it took till 9pm the next day to get her in a room at Hopkins. Mike said they took her to ultrasound right away, and later will do a CT scan or MRI. I talked to her about 10pm and she sounded good, her pain was under control but she hasn't eaten since Thursday and was starving, is NPO as usual.
Dunno how long she will be in. Wish a liver would come in while shes there.....
Mike is staying in the hospital with her, Raven has Madi and I will have Molly starting later today. Please don't stop praying for Robbi.

Robbis Mom

Update August 6, 2010

Robbi's back in the hospital again. Mike called me a few minutes ago and said she went to the ER about midnight with that dammed gall bladder pain again, she is still there waiting for a bed and transportation to Hopkins to be admitted again. She was only out 3 days this time. I will update later tonight when I know more.
Please keep Robbi in your prayers.

Robbi's Mom

Update August 5, 2010

Spent the morning at Robbi's today, along with her sister. She was very alert and NOT confused, seems the 2 full days and nights of sleep following her coming home from the hospital were just her sleeping off the drugs they had given her in the hospital. She still has low energy level but that's to be expected. She seemed more like herself today than she has in over a week. Shes not in any pain, and seemed very happy to be home.
Please don't stop praying for Robbi.

Robbi's Mom

Couple More Things

Robbi's MELD is now 21. Her MELD went up due to her bilirubin level going up (her amount of jaundice/ yellow color) She has jumped over 2 people on the waiting list as of last week/ this week. She is still very sleepy and is sleeping all day and all night. We are not sure if its due to the pain medicine she had in hospital and has at home now, or if she is starting with encephalopathy. She does have confusion but is so sleepy when I talk to her. I am going up tomorrow to check her out and help out with whatever I am needed for while I am there. Unfortunately you don't get any MELD points if you have high ammonia levels which causes the encephalopathy. (Which I don't think is fair because rising ammonia level is a significant event in worsening end stage liver disease and I think it should be counted for something...) Please remember Robbi in your prayers.

Robbi's Mom

Tuesday August 3, 2010 Update

Robbi came home from the hospital last night and is now at home resting. I talked to Mike and he said they put her on a bunch of new meds, one of which helps prevent the gall bladder and spleen flare-ups, another one for encephalopathy, and an antibiotic that she has to stay on daily until she is transplanted. He said she is very tired.
I will update again after I talk to her. Hopefully she will be getting her new liver soon! NEVER GIVE UP!

Robbis Mom

Sunday 8-1-2010

Robbi's still at Hopkins. They have done MRI, are planning to or have already done another paracentesis (tap), plan to do an ECG on her, and are working on keeping her pain under control. Mike is still with her and her sister has heroicly been watching the girls (that's 4 kids age 10, 8, 3 and 2...) I am keeping in contact with her over the phone. She sounds very sad and medicated.
Please keep Robbi in your prayers...

Robbis Mom