robbi came home yesterday and while she is .. She's not one to "lay around" sll dsy,tired, her ascites is worse and she is very yellow; her appetite is good and she enjoyed sitting in the backyard and being w/ the girls & mike. She likes/needs her naps but still participates in the kids social activities too whenever possible,
Her MELD is a twenty-one, she was back at Hopkins due to varicies which were hemorrhaging. She says she is glad to be home but feels so 'safe' in the hospital. Mike and I feel the same way- we like her in the hospital because WE feel she's safer there. Thank you all for your prayers and kind words, it means everything to us.
Robbis Mom
skip to main |
skip to sidebar
ROBBI,28,HAS HEPATITIS C AND NEEDS A LIVER TRANSPLANT. THIS BLOG IS ABOUT HER JOURNEY FROM LIVER DISEASE, TO TRANSPLANT, AND BEYOND. Written by her Mom.
One Last Thing
Thank You to every single person who read Robbi's Blog, who left notes of encouragement either here on the blog, or in private messages on the boards, or in posts to Robbi and I on the boards, or in emails to Robbi and I.
Thank you for following her and her family on her almost 18 month long journey, which thankfully has had a happy ending.
We especially want to thank:
Our Lord and Saviour, Jesus Christ, without whom this transplant would not have been possible.
Dr. Gurakar- Gastroenterologist & Hepatologist
Nancy Carey-Beaver, RN Transplant Coordinator
Dr Cameron- Fabulous Liver Transplant Surgeon
All of the Johns Hopkins Liver Transplant Team working the OR :)
The Angels that we called Nurses in the SICU
All the staff of Nelson 7- Transplant Unit-you ALL rock!!
Robbi's wonderful husband Mike, who rolled with the punches, became a Mom and a Dad sometimes, was a rock for Robbi to lean on, made this journey beside her, and kept his sanity, somehow, through it all.
We Thank and Honor the Donor Family, for their most precious Gift of Life. May the Lord heal their hearts, as He is healing
Robbi's body.
Thank you for following her and her family on her almost 18 month long journey, which thankfully has had a happy ending.
We especially want to thank:
Our Lord and Saviour, Jesus Christ, without whom this transplant would not have been possible.
Dr. Gurakar- Gastroenterologist & Hepatologist
Nancy Carey-Beaver, RN Transplant Coordinator
Dr Cameron- Fabulous Liver Transplant Surgeon
All of the Johns Hopkins Liver Transplant Team working the OR :)
The Angels that we called Nurses in the SICU
All the staff of Nelson 7- Transplant Unit-you ALL rock!!
Robbi's wonderful husband Mike, who rolled with the punches, became a Mom and a Dad sometimes, was a rock for Robbi to lean on, made this journey beside her, and kept his sanity, somehow, through it all.
We Thank and Honor the Donor Family, for their most precious Gift of Life. May the Lord heal their hearts, as He is healing
Robbi's body.
Followers
3 comments:
Glad to hear you are at home with your children. Every second with them is precious. Any mention from the doctors of the TIPS procedure being done? Since my sister had this done she hasn't had any problems and her meld score went down. Also wondering if you would mind if I put you on our prayer list at church? Your in my prayers.
Robbie, so glad you are home, feeling better I surley hope you and your family have a peaceful and happy Easter. I will be thiking of you as I do everyday. Please remember me to Maddie and Molly..give 'em lots of love and let lots of folk love you ! Is Mary
comining up to visit for a while?
Hope so. Much love to you,
Virg
Robbi...glad you are home!!!
Hope you had a Happy Easter! Had a quiet one here! It was wonderful!!! Been really hectic lately and been traveling for work so it was nice to slow down and take a breath!
Hugs to you and your mom!
Sadie
Post a Comment