Friday, June 11, 2010

June 9, 2010 doctors appointment

June 9 Robbi and I went to see her regular transplant GI doc at Hopkins, who has been on vacation. We were anxious to get the "real" story for this cancerous nodules we were told she had when she was in the hospital a few weeks ago, something her GI doc had not mentioned to us and had us freaked out when we were informed she had liver cancer by an attending doctor at Hopkins last hospitalization.
Her GI transplant doctor told us the 9th that she does have a nodule 1.5 cm that's liver cancer, but "not to worry" (yeah, right) because they really aren't concerned about these types of nodules until they reach 5 cm. In 3 months time, from her last MRI 3 months ago till the one she had a few weeks ago, the size of the largest nodule has not changed. He said this nodule won't even get her any extra MELD points, she remains at 21. :( He told us she remains very close to the top of the list although that spot is 'dynamic' and one day she can be next to be transplanted and the next day she can have 5 people ahead of her, people whose conditions have worsened and are worse off than Robbi. At any rate, he gave her an appointment for July 7 and said he will see her then, if she hasn't already been transplanted by that time. Its very much a roller coaster type ride, for sure. Robbi remains in good spirits and looks good. Her awesome tan hides the jaundice she has, you have to look at the whites of her eyes to see how really jaundices she is.
Please remember Robbi in your thoughts and prayers, and thank You.

Robbis Mom

2 comments:

Sandra said...

Hope you have a wonderful Father's Day and can concentrate on that.

You are in my thoughts and prayers.

Sandra said...

Checking in.......hoping for good news.

Been really hot here......hoping you are at least having good weather and feeling good.

Take care of yourselves!!

All my best