Jessie the dog, drawn by Madi

Hospital Again

Robbi went back to Hopkins on Tuesday 4-27-10 after spending Monday night in her local ER with several problems related to her ascites, she was full of fluid all over from her face to her toes. She left the ER and went to Hopkins @ Hopkins request and was admitted to be tapped to get some of the fluid off of her. Once she was there they had problems finding a good "pocket" to drain the fluid from, it appeared to be kind of spread throughout and they had not one good spot to drain it from. They gave her some albumin IV and then they did a couple attempts to tap her in the room but were unsuccessful so got a portable sonogram to see if they could find a pocket with that and try it again, which was not successful so they decided to take her down to the sonogram department and get a real sono and look for a pocket there. Which, as of last night (Wednesday)still hadn't happened. The news this morning is they did find a pocket and marked it on her skin and sometime today will drain her from that spot. At any rate they said once she is tapped they want to keep her at least 2 days more for observation, and they said they were going to be giving her some blood products also.
I have no idea how her labs are. But, I imagine not too great. Her spirits are so-so, and she does have her laptop with her.
So depending on when the tap happens, plus 2 more days after that or so, I am guessing she might be home end of the weekend or Monday, I don't know.
Thank you for your prayers and concern for Robbi.

4-17-2010

FAITH IS THE BIRD THAT FEELS THE LIGHT AND SINGS WHEN THE DAWN IS STILL DARK.

Rabindranath Tagore (1861-1941)

Credit for this wonderful quote goes to my old friend, StickyBeak.

Update 4-16-2010

Robbi is still waiting. Shes very tired and has been going back down for a nap as soon as she gets her oldest off to school in the morning. She gets up a little around lunch then back down for another nap. Some days are better than others, she still gets out and gets around but not as much as she would like to. The ascites and fluid retention really has her down, as does the waiting. Shes still a MELD 21. There's no way she can run her house and take care of the kids without the help of others. She keeps her spirits up most of the time but she does get down in the dumps a lot too.
We have praying hands by the phone in hopes that call will come soon, and are still packed and waiting for when it does. Thank you for all of your prayers and good thoughts for Robbi.

home again

robbi came home yesterday and while she is .. She's not one to "lay around" sll dsy,tired, her ascites is worse and she is very yellow; her appetite is good and she enjoyed sitting in the backyard and being w/ the girls & mike. She likes/needs her naps but still participates in the kids social activities too whenever possible,
Her MELD is a twenty-one, she was back at Hopkins due to varicies which were hemorrhaging. She says she is glad to be home but feels so 'safe' in the hospital. Mike and I feel the same way- we like her in the hospital because WE feel she's safer there. Thank you all for your prayers and kind words, it means everything to us.

Robbis Mom

Back at Hopkins 3-22-10

Robis back at Hopkins for a few days for a colonoscopy. Since shes a bleeder it must be done there. Mikes staying w/ her this time and I will have the girls. Thank you for your continued good wishes. They forgot the camera so no good pictures this time.

Robbis Mom

feelin good

this has been a pretty good week, not too much ppain and other that not sleeping im doin ok. the girls and daddy have been sick with the flu but seem to be better this morning. my mom is coming back to day after she gets her hair cut, i hope she doesnt break another toe! also waiting for labs ill keep you updated as of right now my meld is 20